Hi everyone! I am 25 and have learnt i have endometrioma in my left ovarian (4cm) and high CA125 level, my doctor wants me on Visanne. I have read so many side effects and therefore i couldnt dare taking Visanne.. I am on Yasmin contraceptive pill instead. My mother told me she also had endometriosis when she was few years older than me and even with endometrioma in one ovarian, she could get pregnant and give birth to my sister.. Could you share with me if you have similar experiencesā¦ read more
I've been on visanne for 6months. Almost 4months having this spot/slight bleeding. The next day right after finishing 6months taking visanne i got slight period. I dont know if it is normal. My endoā¦ read more
I have 2 endometriomas on my left ovary. I was scheduled to have them removed next week but the hospital cancelled my surgery due to the guidelines for the Coronovirus right now. Since my surgery is postponed Iām taking this time to do a lot of research. Iām learning excision is the best method. Iām wondering how likely they are to return or for more to develop if Iām not on anything after the surgery? My doctor said if I donāt suppress the hormones it will grow back but I thought if they wereā¦ read more
Consider looking in different states, if you find one that takes insurance it might be more doable even with the cost of travel
After going to an MRI my doctor confirmed the presence of a chocolate cyst around 5.5cm (left ovary) and one of 2cm (right ovary). He decided to give me the combined pills (Levonorgestrel/ethinylestradiol; 0.10mg/0.02mg) and he said to me that I should come back in a month to see if the cyst shrank or not, if not then he would recommend a surgery for removing only the big cyst.
I started taking the pills on the first day of my period and 29 days after I was still bleeding (non stop), on theā¦ read more
@A MyEndometriosisTeam Member - YAAAY!! I hope you're able to see one soon! And glad to help!
I can count on one hand the times that me and my boyfriend have had sex in the last year- sad I know
I just had excision surgery back in May and of course I'm terrified of getting back on the horse... seemed like an appropriate analogy. We have tried once since my surgery after waiting long enough and it still hurt but at the time I wasn't on any type of birth control so we had to use a condom and my fun parts have never agreed with most types. I'm thinking that was the main problem (more likeā¦ read more
Sorry to hear about your situation with your partner. My ex-husband is understanding of my condition and he is still supportive even though we didn't have sex. I believe education for men and eveyoneā¦ read more
My gynecologist told me that she is certain I have endometriosis as well as pcos, with all my symptoms fitting them perfectly. But she also informed me that it would require surgery to confirm it so that I can get the treatment needed. I canāt take time out of work or college to do the surgery and life is miserable living it in pain and sleeplessness all the time. Itās not just a matter of missing out on work or school, itās the money too. I canāt afford to be off more than a day, and Iāve beenā¦ read more
I can't answer why but I agree that it is ridiculous and unfair. I had the discovery surgery just to get told "yes you have it" and had to have the excision surgery 3 weeks later. Such a waste.
Normally yesi But please notice that MRI or USG is very good for endometrioma not for deep endometriosis. If your clinician is not specialist on endometriosis it is not easy for them to diagnose deepā¦ read more
Does anyone else have problems with endo & urine leakage? I find myself leaking wee a lot. Currently waiting on next surgery for extensive endo
I have bladder issues and I have use bladder underwear and underpad on the bed
I started my period 11.11 and had normal bleeding for a week and then I started to have this problem and I still have it (22.11) It is not a first time
Iāve almost always bled brown blood at some point during my period. Normally at the end for several days. But sometimes in the middle too. And other times, always when I was trying birth control, forā¦ read more
I was diagnosed with PCOS years before I was diagnosed with Endo. I managed to keep it in check largely through lifestyle changes (mostly food) and a few months here and there of medication. I wasā¦ read more
My gynecologist told me that she felt a pelvic mass on a bimanual exam that suggested to her that I might have an endometrioma or more on the other side of my vaginal cuff. She also noted a polyp on the vaginal side of the cuff that might be endometriosis. Why would a transvaginal ultrasound and a CT scan find absolutely nothing, when I was in so much pain that I needed hydromorphone in the ER to control it?
Sorry you are still experiencing pain after all youāve been through, it feels hopeless at times. Maybe the doctor who did your pelvic exam was incorrectā¦.or maybe you have a lesion where they canātā¦ read more